Coffee heat rising

Great News!

Hallelujah, brothers and sisters! Just heard from the Mayo’s breast clinic: the path report came back NEGATIVE!!

By coincidence when the call rang through I was standing around fiddling with the required self-care procedures and thinking  “ooohhhhh i’m sooo scared the path thing is going to show an invasive cancer moooaaannnn!” 😀

She said the Innocent Boob was clear of any threatening cells; the Guilty Boob still had some residual DCIS, which is what we suspected. The margin was clear, and so it looks like the end of this little horror show is finally in sight.

woo HOOO!

Twiggy_promoAdmiring my new sylph-like self in the mirror, I believe I’ll change my name to Twiggy. 🙂 Remember her?

 

 

 

 

It LIVES…after a fashion

Frankenstein's_monster_(Boris_Karloff)Gronk! I’m back! They ran electric current through the brain and the whole apparatus lurched to life!!!

We ended up scheduled for 10 a.m. yesterday, which meant it was noon before they rolled me off to the OR. The surgery went uneventfully and by the middle of the afternoon I was ensconced in a nice room at the Mayo Hotel Hospital. No roommate, thank goodness!

The Mayo staff are SO nice! It’s like being waited on by angels and archangels.

So far WonderSurgeon seems pleased enough with the outcome. We await results of the path report, which is always a worry…but she didn’t seem to feel too concerned. She didn’t take out any lymph nodes out; that’s how confident she is that there’s no invasive cancer in there.

But…ahem…we’ve heard the wind blow before.

At any rate, all in all it was as “pleasant” an experience as any such adventure can be. If I could dream up any complaints, it would be the food and the pillow. Bring your own pillow to the hospital! 😀 Theirs was small and hard, so that instead of cradling my head, it would let my head roll all the way over to one side or the other, so that if I dozed off I’d wake up to my neck stretched and hurting. Sort of like sleeping on a piece of lumber…

The food? Well…hospital food. One doesn’t fully grasp how terrible that is until one is confronted with it, so hungry one could cry, and finds the stuff on the tray is utterly inedible.

Wouldn’t you think in a medical establishment they’d serve you something other than salt and sugar? Last night they showed up with canned broth (salt with some chicken-flavored water added), this ICKY protein drink, two of whose top ingredients were sugar and corn syrup(!), JellO (ech! devoid of nutrition and vile to boot), and sugary lemon sherbet. This morning my head hurt from not having eaten in two days, and they served up these rolled pancake things — cold, with the flavor and texture of cardboard, along with still more sugary gunk.

When I said I just couldn’t eat that stuff, the sweet young orderly said he’d go downstairs and order something. He disappeared for two hours, during which time my son arrived, saw I was faint with hunger, and went downstairs for a bagel. By the time he got back upstairs, the young man had arrived with a pile of fresh fruit and a bowl of cottage cheese. And two slabs of salt with pork attached…uhm, pieces of bacon.

I don’t think I’ve consumed that much sodium in a month! How hard would it be to offer people something healthy for breakfast — fruit and cottage cheese (which itself is awash in sodium).

Luckily my friend Carol surfaced this afternoon with a beautiful salad and a dish of grilled chicken and fried brown rice with edame and veggies. Awesome!

It is extremely quiet on the Mayo’s hospital floors. If one weren’t attached to various monitors that beep and buzz to themselves, one could probably rest wonderfully there. I got about an hour’s sleep, maybe two, with with the machinery going off every 45 minutes or so and the nurse being required to come in about once every two hours to check vitals and surgical swelling. That was OK…I probably wouldn’t have slept any better in my own bed!

Anyway, it sure was a relief to get out.

In a week and a day, the drains come out (so it’s planned), and then, barring discovery of any stray cancer cells, I should be able to pass as human. Almost.

Waiting for Godot…or something like that…

Welp, I’m pretty much ready to go for tomorrow’s Adventure in Medical Science. Called the Mayo and learned we’re not scheduled till 10 a.m., not (as promised), at 6:00. That’s annoying in one way but maybe better in a couple of other ways. First, we don’t have to leave the house at five in the morning, which is mighty nice. Second, I’m allowed to eat and to drink fluids until midnight. So my plan is to try to get amply hydrated: I’m gonna sit here until around 11 p.m. watching Netflix and sipping water, which I hope will help with the excruciating thirst while we’re sitting around waiting to be called in.

This afternoon my son came by and asked me to dinner — I’d already stuffed myself, so that was kind of moot. And he puttered around collecting keys and trying to figure out what would need to be done. And advising me, in his manly way. 😀

I’ve got two old Land’s End soft-sided briefcases. One now holds a set of PJs, extra underpants, toothbrush, and the like. Oh, and something to hold my glasses. And the phone (I figure the Mayo may not have land lines into every room the way hospitals did in the good old days!) and a list of phone numbers (mine is not a smart phone). And a book. And a yellow pad and a pen.

Then I’m putting the laptop (and its charger cord!) in the other one and giving it to my son to haul around. Whenever I get settled in the room and come back to consciousness, I’d like to have that at hand, since it’s my main source of amusement. Must remember to bring the Netflix codes.

Hmmmm…. I hope that if they put me in a room with a roommate I won’t have to listen to a dratted television blathering away. I hate that! I should probably ask M’hijito to bring a pair of earphones, since I don’t have a set.

So tomorrow the endless round of surgeries will be over (I sincerely hope!), and with any luck three weeks from now the worst of this little adventure will in the past.

Meanwhile, today the freebie Knitted Knockers arrived in the mail. Not very impressive, I’d say.

First, I asked for a size “C.” They’re a bit large for my bras, and the bras I tried them in are C-cups.

Second — and this may be a function of the way they’re stuffed rather than the way they’re made — instead of being cone-shaped, they look like little chair cushions.

Heeeeee!

The person who made them sewed a thread or piece of yarn through from front to back (exactly as the Tit Bit instruction says to do, at Knitty.com) and pulled it tight, just as you would when you sew a cushion with a single button in the center, so it’s poufy all around the circumference and pulled firmly tight in the center.

{chortle!} Looks like I imagine a Whoopee Cushion looks!!

The ones Windy City Gal discovered are more cone-shaped, flat on one side and perky on the other, presumably like the ones pictured at Knitty.com or like the ones shown here at Canadian Living.

I’ll e-mail the Knitted Knockers lady and ask if there’s a way to adjust them so they look more like boobs and less like seat cushions. First, I’ll have to figure out a tactful way to say that…  😆

 

The Pre-Prep Room Prep Jamboree

So here I yam, starting to get my dainty self prepped for the dramatic surgery I get to enjoy next week. My Mastectomy Buddy went in yesterday…and I hope to hear from her in a day or two.

Her adventure is even more dramatic, because she has an actual invasive cancer. Thank the Lord (or Lady), I managed to escape that. Her mastectomy: pretty much de rigueur. Mine: pretty much a matter of smarts.

So we’re keeping her in our thoughts.

And we’re also keeping another Dear Friend in our thoughts: as I was driving into the ‘hood yesterday afternoon I spotted her strolling up the road with her big, friendly, lop-eared dog. Her husband has been enjoying lung cancer these past many months. She looked tired, even haggard. I stopped to block traffic and chat. She said they had hospice in. Called their son, who’s on his way in from out of town. Hospice worker was amazed the old boy made it through the holidays. She says he sleeps most of the time.

God, please let us sleep through the dark of that good night.

So where were we? Yes. We were thanking our lucky stars, because things could be worse. Much, much worse.

This afternoon, with barely a week that’s not occupied by holidays and parade road closures to go, I decided I’d better get my act together.

Insights:

1) One can order the desired peri-surgical gear from Amazon and waypoints rather than running around the city searching for recommended items.

2) One could, in theory (only in theory, right?) stock up one’s favorite boozie-poos and open the bottles. These, then would be ready to go without any painful struggles.

We’re told that for the first three to six post-surgical weeks, opening screw tops and especially adult-proof caps is excruciatingly painful. If unscrewing the cap on a bottle of detergent hurts, just imagine the effect of a corkscrew applied to a cheap bottle of wine!

3) We want some comfort food, and we don’t care how fat it makes us!!!!!!!!!

4) All those items in daily use — the dog dishes, the giant Costco bottle of Maker’s Mark, the French press coffeemaker — really, truly NEED to come down from the high shelves in the kitchen.

So it’s time for a raid on Amazon, there to buy a package of two female versions of the famed Wife-Beater: in woman language, “cotton tank tops.” These, we’re told by those in the know, will absorb any leakage (t0 be expected, argh urk) from the tubes installed in our chest to collect drainage from the not-so-gaping wounds to be inscribed thereupon.

From there to Knitted Knockers, which gives away freebie knitted prosthetics to the cancer-victimized…sorry, by golly, to “cancer survivors.” 🙄 This, even though we know our friend Windy City Gal is making a much nicer pair for us. We figure an extra pair, even though evidently inferior to Windy’s, will be handy to have around.

Then it’s over to PinkPockets, there to ask for a set of five self-stick “pockets” to attach to the inside of whatever piece of clothing you care to name, to hold the “grenades” (suction devices) for the drainage tubes we will be fitted for. Mastectomy Buddy has kindly provided a strap-on bulb-holding purse, which  looks  like it (also!) will be superior, since one of PinkPockets’ customers complained vociferously that the product’s double-sided tape didn’t work.. So the stick-on pockets, too, amount to a back-up.

Buddy’s daughter whipped up a pair of these, one for her mom and one for moi. They attach to you with an elastic waistband, and they  hold four (count’em, FOUR) grenades. Is this handy and dandy or  not?

Mastectomy pocketThe plan is to wear this out of the hospital — whenever it gets here, it goes straight into the Overnight Bag collection.

Thence, we’re off to Sprouts, via the Walgreen ‘s.

At Walgreen’s, I picked up a package of safety pins, said to be necessary to pin the grenades…uhm, the drain pump thingies…to a bra or your clothes. (Ha ha! I love it where this writer compares the thing to a church incense censer!!!)

Also picked up a cheap toothbrush — I use an electric toothbrush, once affordable but now pretty much out of the question, which I am not about to take to a hospital — plus some dental floss to pack in the overnight baggie. WonderDentist, thank you very much, hands out toothpaste samples every time his underlings clean your teeth, so I had a nice new little tube to add to the pile of loot.

Crossing two main drags on foot from the Sprouts to the Walgreen’s, I pass a big bearded bruiser of a guy all decked out in a black  leather gladiator outfit, complete with a black leather miniskirt. He is unsmiling. Does he take himself seriously? Is he stoned? Is he the butt of some biker gang’s initiation ritual? Or is he just crazy as a loon? I do not know. I dodge inside the store and lose myself in the labyrinth of aisles, knowing there’s a way out through the pharmacy and that the pharmacists do not have the physical strength between the three of them to stop me from vaulting over the counter and blasting out the back door.

At Sprouts, what should I stumble across but a package of lovely chicken thighs and two packages of lovely lamb shanks? Both of these are the Stuff of Comfort Food.

The plan is to cook up an entire package of Costco pasta, toss it in a little olive oil, and freeze it in small packets. Then cook up all four lamb shanks with lots of onion, garlic, celery, and red wine. Freeze this into portion sizes, too. And last night I grilled the chicken pieces and dropped them in the freezer.

Contemplating the comfort-food qualities of these items, I recalled one of my favorite childhood dishes: my mother used to make this incredible garlic chicken under the broiler.

She would spike plenty of butter with garlic powder or (more likely) garlic salt. Then she’d baste the chicken pieces with that and run them under the oven broiler until done. (We lived in apartments, so there were no outdoor grills. Besides, no one ever heard of a propane grill in those days.)

Heh. My mother never used real garlic. Literally, I never saw a head of garlic until I reached graduate school and took up with friends who fell under the influence of Julia Child. She wouldn’t have known what to do with a clove of garlic. And come to think of it, I don’t know if my mother ever saw actual whole garlic.

Well, no bottles of powdered dehydrated garlic reside in my house these days. Only the real stuff will do.

It’s not the same.

I minced a couple cloves and melted them into some butter; basted the chicken thighs with it and let it sit for awhile. Added some adobo powder, figuring that would add the sort of je ne sais quoi flavor of artificial spice. Grilled, with frequent basting.

The result was very good, but not the same as my mother’s. Probably in reality better. But not the same.

Oh lordie! I overslept; it’s almost time for the cleaning lady to show up and the chill’s not off the house yet and I haven’t even started to fix dog-and-human-breakfast.

And so, away!

Terminal senility…or drug-induced brain fuzz?

A friend on the choir cleared up a little mystery that’s been lurking around for a while. She’s a pharmacist — has been for some decades.

She, having observed that recently I’ve been even more bat-brained than usual, remarked the drug anaesthesiologists use to knock you out causes a kind of brain fog that can last upwards of a month. Hmmm…

The Mayo’s nurses tell you not to sign any legal documents for a day or two after the surgery on the theory that you may feel confused for 24 to 48 hours. But my pharmacist friend says to extend that to several days, and not to be surprised if you can’t remember where you left your fingers for several weeks.

Insight!

That explains a lot. Since the current surgical marathon has been going  on, I’ve become as scatterbrained as Lucille Ball! I cannot remember ANYTHING. Every day I lose something, I make wrong turns, thinking I’m turning into the neighborhood but ending up in the one to the south. And I’m constantly making weird little ditzy mistakes.

She says that’s the long-term effect of the anesthetic. She advised being careful not to leave the kitchen when you’ve got a pan on the heat, and not to get upset when these little glitches happen. And also to be extra careful while driving.

LOL! The other day I had a 7 a.m. meeting in Scottsdale and a 9:30 a.m. in northwest Phoenix, way on the other side of the Valley. (The “Valley” is larger than the city of Los Angeles, which should give you an idea of what that means.) I wanted to let the dogs out between them so as to have less mess to clean up after getting back from the second meeting.

So around 8:50 I come flying in the door, rocket to the bedroom and let the pup out of her crate, shovel the two dogs into the backyard, stash my computer in the car for the 9:30 meeting and haul the stuff from the 7:00 meeting and dump it in the office, lock the dogs into the backyard with the dog door open and the bedroom door to the dog-door room closed (more mess prevention), fly back out the door, leap into the Dog Chariot, charge out of the garage, get about a half block down the road and think…hey! WHERE’S MY PURSE?

Well, it’s not in the car.

Back to the house.

Not in the kitchen. Not in my office. Not in the living room. Not in the dining room. Not on the bedroom bureau. Not even in the bathroom! Helle’s Belles! I figure I’ve left it at the restaurant.

Now I’m frantic — the Scottsdale restaurant where my bidness group meets on Thursday mornings is a half-hour drive away! And my entire life is in that thing. And it’s a breakfast joint — closes in the early afternoon. The other place I have to be is a half-hour in the other direction.

Grab the phone, look up the place’s phone number, dial it, and pace anxiously around the house waiting for someone to pick up the phone. That’s when I see an odd black mass sitting on the bed.

A short, fat zombie?

No.

I’d dropped my purse on the bed when I shot in to let the puppy out of her crate. And completely spaced it. Never would even have begun to think of looking on the bed for it. Nor would I normally drop a purse on the bed anyway.

For the past ten years or so, I’ve been deep enough into my dotage that I can’t find things unless I put them down in the same place all the time. But over the past more recent while, what with four procedures in five months, it’s gotten much more ridiculous. 😀

Cotta2Last weekend in some kind of a hurry, I took off my choir robe and cotta and tossed them on a chair in the choir room, and flew out to do something — don’t even recall what (because of course I can’t remember my name longer than about an hour these days). When I got back, someone had taken the robe and left the cotta (or at least so i think). So I get a substitute from the store of new ones. I become so preoccupied with this that I don’t realize I’m supposed to be wearing the brightly colored chant choir robe, because chant choir is singing the introit. So I throw on my white cotta and, late as usual, run to join the others at the front of the sanctuary (oh, yes…where ELSE?). Naturally, I’m the only one up there who doesn’t match. And the communications director is shooting photos. I try to hide in the back row, no doubt ineffectually.

As if that weren’t enough, shortly I manage to lose one of the church’s music books — these are lent to choir members, assigned by numbers. Between last week’s rehearsal and this morning, I search the house, I search the car, I rack my brain. Finally realize I probably left it in the choir loft (or maybe in the choir room) (or who knows where?). But since it’s nowhere to be found, I figure I’ll be purchasing and donating a new music book. Hmm… £13.95. That would be $21.92. Plus shipping.

Fortunately, the choir director found it and put it aside. Saved!

People say things in meetings. I can’t remember what was said. I don’t even remember that something was said. I write and distribute a report that makes it obvious I haven’t a clue.

I say I’ll do things. And have no memory of saying I’d do those things.

I show up at choir practice late because I’m so engrossed in grading papers I lose track of the time.

I go off and leave the space heater on.

Have you noticed that as you get older, it takes you longer to get out of the house? That you’re always running late because you’re bloody never ready to go???

That’s not a function of the drug-induced brain fuzz, but it certainly has been aggravated of late.

I started trying to figure out why it takes so long to get out the door now that I’m old, given that I never had this problem as a young pup. What has changed?

What, indeed.

  1. Computers. Back in the good old days, one didn’t fill the first moments (and the next moments, and the next moments…)  of the morning with e-mail. Now every day starts with a check of e-mail, replies, maybe another check for replies to replies.
  2. Makeup. When I was young and pretty, I didn’t need to paint my face quite so artfully. Yea verily, I didn’t really need to paint my face at all, and often didn’t. Now a good, thick layer is required to cover the brown spots and fill in the wrinkles.
  3. Lost stuff. A lost purse. A lost file. A lost list. A lost whatever.
  4. Liquids. I never used to carry a cup of water with me every where I go. Not a chance. I never fixed coffee before leaving the house so’s to pour a mugful and stash it in the car. If I wanted coffee, I bought it en route, usually at a nearby Dunkin’ Donuts, now defunct. Now I’ve taken it into my head that the car can’t leave the garage unless it’s stocked with something to drink.
  5. Locked office door. Whatever I’ve remembered that I forgot, it’s always on the other side of the goddamn deadbolt on the office.
  6. Dogs. In the olden days, dogs did not shit all over the goddamn floor. Therefore, the household livestock did not have to be wrangled into pens or herded outdoors before the human could leave the house. One could simply close the door behind one and lock it, leaving the dog inside to snooze undisturbed until one returned.
  7. Dog food. Before the melamine flap and the offshoring of everything, including dog food, to China, I fed the dogs kibble. It took all of 10 seconds to dish up a bowlful. Now I have to fiddle around with measuring out eight ounces to each dog from packages of freshly made concoctions and then storing the remainder back in the fridge.
  8. Dog competition. Dogs of yore did not try to steal each others’ food; therefore one of the dogs did not have to be tied to the oven door to keep her from chasing her betters away from their dog-food dishes…
  9. Space heaters. Back in the day, one could afford to pay to run the central heating.

So it goes.

The whiteboards with the calendars and space for daily to-do lists help a lot, especially the one that’s now installed on the back door. Lately I’ve been trying to organize stuff a day or two in advance and load it into the car, making it harder to forget things and cutting the last-minute thrash-around factor. I try to remember to put everything back in its accustomed spot (if something isn’t where I expect to find it, I’m not gonna find it). I’ve quit carrying water, tea, or coffee in the vehicle. I make lists, in hopes of not forgetting something important. But I can’t second-guess what I’m going to forget.

 Got any ideas? What do you do to avoid losing things, forgetting things, muffing things, and chronically running late?

wooHOO! What a Relief. {And an unexpected hoot!}

Hoot first: I come flying in the door from the doctor, who has spent a half hour or forty minutes talking about the bilateral mastectomy slated for January 6. Grab the mail out of the mailbox, and what do I find?

Yes!

A jury summons! For…when else? January 6.

😆

I’ll have to call tomorrow to get an extension, preferably a couple months’ worth. How hilarious is that?

Well, it struck me as hilarious because after talking with WonderSurgeon I came away feeling a great deal better. Indeed, HUGELY reassured.

In the first place, contrary to my expectation, they found NOTHING in the non-guilty breast. No masses, no calcifications, no weirdness of any sort. The guilty breast was not so cut [heh!]-and-dried. She said it was hard to tell because the surgery confounds MRIs with its disruptions, but it was possible there was some residual tumor there. Possibly not, too.

But we agreed that given the size and extent of the DCIS she removed — large and a lot — the smartest, safest, perfect no-hassle course of action is to lob off the guilty boob. She also felt comfortable about removing the innocent boob, for the sake of symmetry (hey! I’m getting Medicare to pay for cosmetic surgery!), safety (chance of recurrence in the contralateral boob is enhanced by the existence of a large DCIS in the other boob, by several re-excisions, and by age), and nuisance factor relief (NO MORE MAMMOGRAMS! EVER!!). This will virtually eliminate the possibility of any future DCIS or invasive cancer in my boobs, from now into perpetuity.

So now I show her the images of what I hope she can do and what I hope she can’t do:

Please do this:

or this:

Not this:

She said it was fairly easy to get the uncomplicated, flat, smooth result shown in the first two images. What appears in the third image is, she said, an unsatisfactory outcome. Part of it is that the woman is stylishly plump (I would not call her “fat,” personally) and part of it is that the surgeon failed to achieve an adequate result. But, she said, given that I’m fairly slender and my boobs aren’t very large, the result should resemble what appears in the b/w images here.

Thank goodness I dropped those 35 pounds last year!!!

Then she showed me some images of one of her patients (no face, no name, no identifiers visible), which she’s planning to put into a presentation for early next year.

Well, when I say WonderSurgeon, I exaggerate not.

This lady — the patient — was a good 80 to 100 pounds overweight. Maybe more. She had large, sagging breasts — very large — with neoplasms in both. For her a double mastectomy was not optional.

The incisions, while long (because it took a lot of doing to remove the substantial amounts of fatty tissue), were as neat and smooth and flat as you can imagine. She showed me the incisions as they looked right after she completed the procedure, while the patient was still asleep on the table, and then she showed how they looked three weeks later,  just about healed. The woman’s chest looked just fine: no “dog ears” as on the poor gal shown in the third image above, no distortions, nothing bizarre in any way.

WonderSurgeon explained in detail exactly how she accomplished this particular work of art. There’s a trick to it, and it’s one she figured out for herself. It’s one of those things that seems simple when it’s explained, so much so you’d think it would be obvious, but it’s not obvious until someone has an Insight.

If she could do that for a woman who presented a challenge of substantial magnitude, she certainly can make me come out like the women in the two b/w images above. Sans the tattoo, of course.

Then I asked my endless set of questions:

Would she refer me to my favorite physical therapist for the shoulder therapy?

Why? You won’t need therapy.

I understand I won’t be able to lift my hands over my head, or even hold a cup of coffee.

You’ll be able to lift your arms over your head, although with the drains in you probably won’t want to for the first few days. You’ll be able to do everything you do normally, right away.

Will the Mayo provide a compression garment, or should I buy a post-mastectomy camisole such as the Amoena 2105 Breast Surgery Camisole with Drainage Management?

Don’t waste your money on that kind of stuff. We’ll give you another compression bra; just pin the drain bulbs to that. You’ll only need it for a couple or three days, as long as it’s comfortable.

When will I be able to pick up a dog bowl (8 pounds) off the floor and put it back down?

Right away.

When will I be able to pick up the dogs (20 to 25 pounds)?

Right away.

A University of Florida page said I may not be able to get out of bed without help. Am I going to need someone to stay with me overnight? For how long?

No. You should have no problem getting out of bed. Or washing your hair. Or putting on a shirt.

Will I be able to wear a plain camisole, without a shelf bra? Or will the scars always be so sensitive that no fabric against them will be tolerable?

Who’s TELLING you this stuff????

The Internet.

And who goes to the Internet? I’ll tell you who: people who have bad outcomes. All the others who have good outcomes get on with their lives and don’t spend their time complaining on the Internet!

Heeee!

Linked images reside at The SCAR Project: Cancer Is Not a Pink Ribbon. Go to the site: it’s incredible. And while you’re at it, buy the guy’s book:

scar projectHe also has a DVD about the project, very affecting and reality-prone:

scar project 2

We are not our boobs!